Oct. 18 Webinar on Role Changes

Webinar: Role Changes and Reversals

Caregivers often feel like they are caring for a child rather than their spouse or parent. This dialogue will uncover the role changes that people experience as they shift from care partners to caregivers. This Dementia Dialogues webinar explores how to manage the feelings that accompany the changes.

  • Wednesday, October 18th, 3-4 PM Eastern (12-1 PM Pacific/ Arizona, 1-2 PM Mountain, 2-3 PM Central)
  • Can’t make it to the live webinar? Don’t worry! Just register as if you will attend and we will send you a recording that you can view at your convenience
  • Sign up here

For those who prefer to join by phone, we also offer an audio version of the Dementia Dialogues webinars. Email bannerresearch@bannerhealth.com for details.

Thank you again for being a part of the Alzheimer’s Prevention Registry, and thank you for all you do to care for someone with Alzheimer’s.

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Creating age-friendly environments in Europe

Creating age-friendly environments in Europe. A tool for local policy-makers and planners (2016)

Policies to create more age-friendly environments, in which a growing number of cities and communities, local authorities and regional governments participate, have become a forceful movement in Europe and globally. These policies explore synergies between improving the physical environment of neighbourhoods, transport and housing; increasing respect, social inclusion and community participation; and investing in public services. This publication provides a toolbox to guide local policy-makers and planners in developing, implementing and evaluating age-friendly policies and interventions – policies that support people to age actively and healthily and thus both to do the things that are important to them and to contribute to their communities. Based on lessons learned from existing age-friendly initiatives in Europe, this publication summarizes key factors for establishing and sustaining successful initiatives within four phases of the policy process: engaging, planning, implementing and evaluating. A wealth of examples illustrates how local governments have put the principles of age-friendly action into practice.

Source: Creating age-friendly environments in Europe. A tool for local policy-makers and planners (2016)

eHealth and improvement of health literacy in older adults – best practices and obstacles

eHealth and improvement of health literacy in senior citizens – best practices and obstacles

03.12.2015By: Ioannis Koutelidas

The implementation of the IROHLA pilot programmes showed positive attitudes of senior citizens towards the use of e-health applications (transfer of health resources and healthcare by electronic means) and m-health applications (delivery of healthcare services via mobile communication devices) for improving and managing their health.

Modern information and communication technology (ICT) can help senior citizens overcome difficulties related to distance from health centres and support them to understand their health issues, improve their communication with care givers and service providers, and enhance informed decision making. Additionally, ICT facilitates more targeted public health and medical interventions, as well as remote diagnosis and monitoring. In general, technology offers tools necessary for families, communities, healthcare professionals and the healthcare system to assist older people to age healthily. ICT creates innovative solutions, such as interventions through the internet, mobile phones, tablets, and video games that can improve the health of older people.

IROHLA’s work on e-health and m-health

The IROHLA project examined several promising practices among different groups of participants, including older adults with low health literacy, using different kinds of technical equipment. Some of these were applications that aimed to increase physical activity and track weight loss, while others supported behavioural change and sleep quality, or were games designed to improve cognitive skills.

One of the pilot projects designed by Prolepsis Institute aimed to improve participants’ knowledge about physical activity and healthy nutrition as well as related behaviours, while exploring attitudes towards ICT-based health applications. The content was based on the Greek National Dietary Guidelines for older people developed by the Prolepsis Institute. This tool enabled participants to set their own dietary and physical activity goals and assess them at the end of a specific period (normally one week) regardless of whether they achieved them or not. The system generated personalised messages based on the assessment of goals.

Research conducted during the implementation of the IROHLA project brought to the surface important learning points and obstacles that need to be carefully examined when developing similar interventions. One of the main conclusions was the need for active and continuous collaboration between application developers, healthcare professionals and researchers. Other matters that should be taken into consideration when designing such applications include simplification of the content and use of the application, and the ability to set short-term, personalised goals.

The importance of considering socio-economic status

In an era of technological innovations, a false perception dominates that all people are familiar with computers, smart phones and tablets. But this is not always true, especially when referring to the older generation. In addition, socio-economic status plays an important role in determining understanding of new technologies and the messages it delivers. That is why these factors should not be ignored when designing e-health and m-health applications that aim to contribute to the reduction of both inequalities between different social groups.

Source: news

7 New Year resolutions for dementia carers

7 New Year resolutions for dementia carers

This article comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

7 New Year resolutions for dementia carers

A new year signals a new start, and what better time to reassess life and set some resolutions to help you and your loved one live well with dementia in 2017…

1. Ensure your loved one has sorted out their affairs

If they haven’t already started organising things such as setting up Lasting Power of Attorney or ensuring they’ve written a Will, the New Year could be a good excuse to make them sit down and get organised. The sooner it’s done, the better, because if it’s left too late, or until your loved starts to lose their mental capacity, the process can be more complicated.

2. Help them make their bucket list

A bucket list can help your loved one take back control and add some much needed excitement and purpose to life after a dementia diagnosis. It doesn’t have to be filled with crazy stunts or far-flung holidays. It could be something as simple as visiting a particular city in the UK that they’ve never been to, or trying out a hobby that they’ve never done before.

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Post-Christmas: Worried about a loved one’s memory?

Post-Christmas: Worried about a loved one’s memory?

 Many family members only see each other during the holidays. As parents and relatives get older, seeing them after one year can bring to light some of the physical and/or mental health changes that have been taking place.
This article comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

Post-Christmas: Worried about a loved one’s memory?

Spending time with a loved one at Christmas is often the first opportunity family members have to notice symptoms of memory loss. Here’s what to do if you’re worried about someone’s memory.

It may have been a few months since you spent time with family members, but when Christmas comes round, you often find you’re living in each other’s pockets for days (especially if you get stuck indoors with cold, wintry weather and a box of Roses).

So it’s no surprise that it’s often during and after the Christmas break that you may notice changes in a loved one’s memory. Where before they may have seemed quite lucid and able to cope with everyday tasks, suddenly you’re noticing that they’ve deteriorated.

And over the Christmas break, you may find that your normally sharp and ‘with it’ relative seems confused, unsure, withdrawn or even a little depressed, raising concerns that all may not be what it seems.

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Christmas can be an isolating time for people with dementia

Christmas can be an isolating time for people with dementia

This article comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

Christmas can be an isolating time for people with dementia

The Alzheimer’s Society has discovered over half of people with dementia see their family less often during Christmas than they did before they were diagnosed

The song may claim ‘it’s the most wonderful time of the year’, but for many people with Alzheimer’s disease or other types of dementia, it can become the opposite, as Christmas can be very isolating.

That’s what a recent report from the Alzheimer’s Society is hoping to highlight.

They’ve carried out research which has found over half of people affected by dementia find Christmas the most isolating time of the year, with many saying that they actually dread the festive season. Just over half (54%) say the see their friends and family less often over the Christmas period than they did before their diagnosis.

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8 questions if a loved one is visiting from a care home this Christmas

 

8 questions if a loved one is visiting from a care home this Christmas

 This article comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

8 questions if a loved one is visiting from a care home this Christmas

If your loved one with dementia lives in a care home you might be wondering whether to bring them home for Christmas, and whether that’s even the best thing for them. Here’s eight questions to ask yourself before making a decision.

You may hate the idea of the person you love spending Christmas in a care home, but although emotions might be running high, it’s important to think carefully and calmly and weigh up all the pros and cons before deciding what to do.

1. How long have they been in the care home and how settled are they?

If your loved one has been in residential care for some time and seems quite content, they may really enjoy a day out, or even an overnight stay. However, if they always seem restless when you visit – perhaps they keep packing their bags or asking ‘when are we going home?’ – taking them out may seem like the ‘right’ thing to do…but may result in them becoming angry and aggressive when they return. If you’re still adamant they should come home with you, then any upsetting behaviour when they return may be a price worth paying… or maybe not.

2. How well do outings generally go?

Be honest: Even if it’s stressful for you, does the person you love seem to enjoy getting out…

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Make Christmas Day special for a loved one with dementia

Make Christmas Day special for a loved one with dementia

 This article comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

 

Make Christmas Day special for a loved one with dementia

 

Are you worried that the person you care for will find it difficult to cope on Christmas Day? Find out how to make the big day enjoyable for the whole family.

Whether you’ve got a houseful of guests on Christmas Day, are invited out for lunch, or are celebrating quietly in your own home, here’s how to overcome all the potential pitfalls and ensure events go as smoothly as possible if you have someone with dementia staying with you.

1. Opening presents

It doesn’t matter how old you are, everyone enjoys receiving presents. A person with dementia might not remember what the occasion is, but if you hand them a present with a smile and say ‘Merry Christmas’ they’ll soon get the idea.

Give them time to open it without feeling rushed. Offer help if they need it but don’t try to rush them. If they don’t want to open it yet, that’s fine too. Leave it until later. A person with dementia can become stressed if they feel everyone’s watching them, so keep present-giving calm and casual.

Try not to take it personally if they don’t seem grateful or don’t react in the way they normally would to a generous or thoughtful gift. Remember, they’re doing the best they can and they still love you as much as they always have.

Watch out for tripping hazards. Presents and wrapping paper scattered all over the floor can be dangerous for a person who’s frail and prone to stumbling. Have a recycling bag ready to clear up wrapping paper and make sure gifts are put somewhere safe

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The 12 rules of Christmas dementia care

The 12 rules of Christmas dementia care

 This post comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

If a loved one has dementia you might be worried about how they’ll cope during the festive season. Read our simple guide to help you make Christmas as enjoyable as possible – for everyone.

1. Have a plan

Taking a, ‘let’s see what happens’ approach to the festive season isn’t going to work when you’re caring for someone with dementia. Spontaneous visits can be stressful so make sure to contact anyone who usually drops by (and who your loved one will definitely want to see) and organise dates and times in advance.

2. Trust your instinct

It’s not too late to change a plan you may have agreed to initially but which you’re now worried about. For example, if you’re dreading an overnight stay with Aunty Alice because you know your loved one won’t sleep and could become very unsettled, trust your instinct, confront it now and either cancel the trip or agree to a shorter visit which can be done in a day.

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The dementia carer’s Christmas product check list

The dementia carer’s Christmas product check list

 This article comes to us from Unforgettable.org. Check them out for plenty of tips, ideas, and interesting articles related to memory and dementia:

For those living with dementia it is easy to be forgotten.

For the family and professional carers it can seem overwhelming and hopeless.

Unforgettable can help on every step of the journey with practical advice, specialised products and a supportive community.

The dementia carer’s Christmas product check list

If you’re looking after someone with dementia at Christmas, this last-minute list will ensure you have everything you need to make the festive season go as smoothly as possible.

Let’s face it, most people’s pre-Christmas to-do lists can stretch on a fair bit, from buying presents and food shopping, to decorating and Christmas card-writing. But if you’re also playing host to a loved one with dementia, chances are you’re going to be feeling like that list suddenly got a whole lot longer. Similarly, if you and your loved are heading off to someone else’s house, you want to make sure that you’ve packed all the necessary items they need over the Christmas period.

While there may be a few more things to think about, your best option is to take note of our list of questions and start preparing with suitable products, so that the days before, during and after the Christmas holidays run as smoothly as possible. This could be anything from checking you’ve got enough dementia-appropriate activities to do, to ensuring they’re comfy and warm in their room.

Ask yourself these questions:

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Dementia and dangerous drugs

Drugs

…antipsychotic medication given to elderly people with dementia it should be at the lowest possible dose for the shortest possible time and always after all other avenues have been tried and have failed.

A poignant and important article on the use of antipsychotic medications in treating people with dementia – please read and share!

let’s get dead right about dementia and dangerous drugs

 

Where to turn for reliable health information

If you are like the majority of people, you use the internet to search for health information. In fact, during my PhD studies, I found that care partners with someone with dementia look up health information more than the general public. While it is great that there is so much information out there and that people are sharing experiences and research, it can also be overwhelming. Especially if you don’t know how to tell if the information you are getting is accurate and reliable.

Luckily, there is the NGO (non-governmental organization) Health On the Net. They strive to ensure that the public gets safe, quality health information and have trusted sources to go to.

Some 7’300 sites are now formal HONcode subscribers, that is, they have a unique ID number and are indexed by us. About 80 per cent of these are US sites, but the proportion of European and other non-US sites is growing. The HONcode now exists in 34 language versions, in addition to English (see, for example, http://www.hon.ch/HONcode/Chinese/).

They suggest searching on websites belonging to hospitals, universities and government agencies. There are also websites that have obtained HONcode certification, including:

Some other tips:

Look for the HONcode seal, often on the bottom of the webpage.  hon-code

Add the term HONcode to a Google search.

Use Khresmoi, a search engine bringing together certified sites.

Search directly on HON.

Click on the link to check out their infographic for more tips and information:

hon-depliant-patient_en

Active support for self management

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Out of the UK:  Part of the summary of the ten priorities for commissioners, we look at the role of active support for self management in commissioning care in the NHS.

Self-management support can be viewed in two ways: as a portfolio of techniques and tools to help patients choose healthy behaviours; and as a fundamental transformation of the patient-caregiver relationship into a collaborative partnership (de Silva 2011).

Source: Active support for self management

my-condition-my-life