An Ohio State University researcher is enrolling patients in the first U.S. clinical trials of two drugs being tested in the treatment of Lewy body dementia, one of the most common but least talked about neurodegenerative diseases.
Source: Ohio State researcher testing drugs to treat Lewy body dementia
One trial is testing the safety and effectiveness of RVT-101, a once-a-day pill that researchers think can restore cognitive function, or thinking skills, in people with Lewy body dementia. About 240 people will be enrolled in the United States, Spain and France for this six-month study.
People with the disease, between the ages of 50 and 85, who are interested in learning more about the trials can call the Wexner Medical Center at 614-293-4376.
I came across this book while browsing online. It’s one woman’s account of being a caregiver for her husband with Lewy Body Dementia (LBD). You can purchase a copy of the book on Amazon.
Living with Lewy Body Dementia: One Caregiver’s Personal, In-Depth Experience
By Judy Towne Jennings PT MA
What worked for us was assuming an “Adventure Attitude.” As we negotiated our way through the onslaught of LBD problems, we also created a memorable story. We took three cruises in five years, two of which were in Europe. We loved to travel and didn’t let LBD stop our trips all over the country.
We set a goal to be honest, loving, considerate, and accepting of each other. I am not saying that living with LBD is easy, but with the choice to use a great amount of love, with an even greater amount of humor, we made the most of our days.
Reviewing my years of notes allowed me to see both the successes and the mistakes that my husband and I made. Our successes were impressive; we turned a tragedy into an adventure that left positive memories. We are not super special people. Deciding to fight for quality of life can happen for anyone. My hope is that this story of our adventure will make the path for others a bit wider and less rugged.
I haven’t read the book yet, so can’t give a proper review. But it is on my radar, and my list of books to read! If you have read it, please leave a comment and let us know what you thought of it!