Improve the human rights of dementia patients and carers

The government must act to improve the human rights of dementia patients and carers

Few now question the right of parents to stay with children in hospital – so why don’t patients with dementia have similar rights?

John’s Campaign is single-issue and simple. It is for the right of carers to stay with people with dementia if they are admitted to hospital. It is named for the father of my friend, the writer Nicci Gerrard, whose father’s dementia was catastrophically accelerated by a stay in hospital where he was largely cut off from his family.

In the 1960s we had to campaign for parents to have the right to stay with their children in hospital. Few question this right now. So why does the same right not apply to carers of people with dementia?

Source: The government must act to improve the human rights of dementia patients and carers

As the world ages, more must be done to protect the rights of older persons

The UN’s expert on the human rights of the elderly describes the key issues she is dealing with and how she hopes to build support to advance her important agenda. Español

Source: As the world ages, more must be done to protect the rights of older persons

Advocating for better treatment of individuals with dementia

This post is from Dementia Alliance International (DAI), who promote education and awareness about dementia. The original text may be slightly modified for this post.

Kate Swaffer’s keynote speech highlights some of the most relevant issues in dementia care and living with dementia:  the need to address the individual, not just their symptoms; human rights issues; balance in dementia research funding; rehabilitation and palliative care in dementia care plans; better diagnostics; delaying institutionalization; inclusion; breaking stigma – I mean, wow, she really gave a great speech! She also touches on two other important topics:  psychosocial stimulation and maintaining work and contribution to society, mentioning her own experience and drive to continue contribution through advocacy.

She is a champion in breaking down stigma and raising awareness for people with dementia, particularly young-onset dementia (before age 65). Head on over to her website, have a read, and sign up to follow her.

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Dementia as a Human Rights Concern

On the 16-17 March health ministers have gathered for the first time to discuss at the highest level dementia as a global challenge.

Ms. Kornfeld – Matte, UN Independent Expert on the rights of older persons has addressed the first Ministerial Conference on Global Action against Dementia Organised by the World Health Organisation in Geneva. She stressed that dementia should be viewed both as a health priority and as a human rights issue demanding comprehensive strategies to tackle it and ensure that the rights of people with dementia are protected in all settings. The Independent Expert has taken a particular interest in aspects of care and autonomy as part of her ongoing mandate. Her annual report is expected in September 2015. In April she plans a visit in Mauritius to examine the state of older people’s rights in the country.

More information about the Independent Expert’s intervention on dementia

For further information you can contact Nena Georgantzi, AGE Legal Officer,nena.georgantzi@age-platform.eu 

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