With the 2016 US Presidential election nearing a close, everyone in my social circles seems to be talking about it. Even though I haven’t lived in the US for 11 years, the election is a main topic both with my friends and family in the US and those here in Denmark.
But, not many are asking about how the election will effect dementia research or services for people effected by the syndrome. Continue reading
From the Alzheimer’s Prevention Registry. They are offering a free webinar on advanced Alzheimer’s disease.
We call the final phase of Alzheimer’s the “advanced” stage of the disease. By this point, someone with Alzheimer’s has become completely dependent on others to care for them. This is also the hardest time for many caregivers.
Free Webinar: Advanced Alzheimer’s – Sign up to join the live webinar OR view recording at your convenience!
Join this Dementia Dialogue webinar via computer to learn the nuances of advanced Alzheimer’s and about powerful tools you can use to ensure comfort.
For those who prefer to join by phone, we also offer an audio version of the Dementia Dialogues. Sign up here or email email@example.com for details.
- Wednesday, October 19, 3-4 PM Eastern (12-1 PM Pacific, 1-2 PM Mountain, 2-3 PM Central)
- Sign up now
In order to receive the link to the recorded webinar, you should follow the registration process in the same way you would as if you were planning to attend the live webinar. Everybody who registers, whether or not they attend, will receive a link to the recorded version after the event on the 19th. Please disregard reminders to join the live webinar if you cannot attend.
research*eu results features highlights from the most exciting EU-funded research and development projects. It is published 10 times per year in English. The August/September 2016 issue is a special feature on ‘Dementia: investing against the trillion dollar disease’.
Issue 55 – August 2016/September 2016
- Julie Wadoux of AGE Platform Europe in Belgium on ‘Stakeholders join forces to create age-friendly environments across Europe’
- Hubert Martens of Medtronic in the Netherlands on ‘Brain pacemakers without side effects’
- Dr. Mark Isalan of Imperial College London in the United Kingdom on ‘The long sought cure to Huntington’s disease’
- Chest pain treatment offers hope for the fight against neglected fungal diseases
- What knowledge societies can learn from foraging societies
- Disrupting the solar energy status quo
- A deeper understanding about the causes of sea-level rise
- New interactive app encourages users to adopt healthier lifestyles
- EU Scientists use silver to make lights shine more brightly
- New tools and methods to protect Europe’s Critical Infrastructure
- Innovative stacking technique results in highly detailed images of Mars
You can download it for free here: http://bookshop.europa.eu/en/research-eu-results-magazine-pbZZAC16007/;pgid=GSPefJMEtXBSR0dT6jbGakZD0000VCTF9fYd;sid=a9NobXoofeZodS3fMVj2yhgNyRAUPX37bQA=?CatalogCategoryID=Yriep2Ix6ucAAAEvxusQ_v3E
And check out other issues from research*eu results here: http://cordis.europa.eu/research-eu/magazine_en.html
Researchers found a specific genetic pattern that corresponded to elevated expression of tau and b-amyloid proteins and weak regulation of protein homeostasis, indicating a high likelihood of future plaques and tangles in those with this gene grouping.
Source: BioTechniques – Foreshadowing Alzheimer’s Disease
An Ohio State University researcher is enrolling patients in the first U.S. clinical trials of two drugs being tested in the treatment of Lewy body dementia, one of the most common but least talked about neurodegenerative diseases.
Source: Ohio State researcher testing drugs to treat Lewy body dementia
One trial is testing the safety and effectiveness of RVT-101, a once-a-day pill that researchers think can restore cognitive function, or thinking skills, in people with Lewy body dementia. About 240 people will be enrolled in the United States, Spain and France for this six-month study.
People with the disease, between the ages of 50 and 85, who are interested in learning more about the trials can call the Wexner Medical Center at 614-293-4376.
Europe is facing unprecedented demographic changes with an increasing ageing population. There are an estimated 8.7 million people living with dementia in Europe and this number is expected to rise. Although dementia is not a natural consequence of ageing, the impact of the condition on the elderly is set to grow. In the absence of a cure or universally effective treatments for dementia, in the foreseeable future, there is both the opportunity and necessity for creative, positive community-based initiatives to support people living with dementia, not only to live well but also be active participants in their communities. It is crucial that ‘dementia-friendly community’ initiatives situate people with dementia at the centre, maintaining a view of them as people, citizens, and equal members of society, not just service users or patients.
Click on the title below to read the report:
Rapporten er udarbejdet af Sundheds- og Ældreministeriet med inddragelse af Sundhedsstyrelsen, Sundhedsdatastyrelsen, KL, Danske Regioner og Nationalt Videnscenter for Demens samt en række andre aktører og ministerier.
Bl.a. peger rapporten på en række udfordringer, som den kommende demenshandleplan forventes at tage fat på, skriver Sundheds- og Ældreministeriet i en pressemeddelelse.
Læse mere: http://www.videnscenterfordemens.dk/viden-om-demens/nyheder/2016/05/status-paa-demensindsatsen-i-danmark-2016/
Og læse rapporten her: http://www.sum.dk/~/media/Filer%20-%20Publikationer_i_pdf/2016/Statusrapport-demens-2016/Statusrapport-paa-demensomraadet-i-dk.ashx
The BBC is launching a range of new online tools to mark Dementia Awareness weeks around the UK.
The tools – ‘RemArc’ and ‘Your Memories’ – have been developed by the BBC to help trigger conversations and memories amongst those living with dementia. They will continue to be accessible to audiences, including those living with dementia and brain injury and their carers, in the future. Alongside this the BBC has produced two special online iWonder guides and a large range of associated programming on the subject of dementia.
Source: BBC launch new online tools to help people living with dementia as part of special season
All the resources and associated programming is available at bbc.co.uk/dementia There are a lot of interesting stories and resources here – check them out!
Last fall, I was invited to join in a webinar during a course on bridging the dementia divide from the University of Derby. This was my first ever webinar and it was really fun!
You can watch the 27 minute webinar on YouTube here.
Currently, I am participating in an massive online open course (MOOC) from the University of Melbourne on the topic of Re-thinking aging: are we prepared to live longer?
The free course is offered through Coursera; it started the last week in April and runs for 5 weeks. You can read more about the course and sign up for future offerings at: https://www.coursera.org/learn/ageing/home/welcome
We were encouraged to keep a journal or blog about our journey through the course, particularly to note where our opinions and ideas have changed from the beginning of the course to the end. I thought this would be a great opportunity to share the course information and my opinions with you – a little something different than my usual posts 🙂 As such, this will be a work in progress over the next 5 weeks. Continue reading
Passage of time: why people with dementia switch back to the past
There are neurological reasons why those affected by dementia judge the passage of time differently, and can access remote memories from many decades ago while unable to remember events of the past few hours.
Interesting article on perceptions of time for people with dementia and how to respond! Read the full article at: https://theconversation.com/passage-of-time-why-people-with-dementia-switch-back-to-the-past-45159
Dementia frontrunner Japan destigmatises condition, stresses community care
When Masahiko Sato was diagnosed at age 51 with early-onset Alzheimer’s, he felt his life was over. A decade later, Sato has a mission: destigmatising a condition with a growing social impact in a country that leads the global aging trend.
“Whether people with dementia can ‘come out’ depends on the values and culture of the community,” said Kumiko Nagata, research director at the Dementia Care Research and Training Centre, Tokyo, adding that attitudes were changing.
Read the whole article and watch the video at: http://uk.reuters.com/article/us-japan-dementia-widerimage-idUKKCN0XB2WS
Dispelling respite myths for people with dementia and their carers
ReThink Respite is a new online resource aiming to support people with dementia and their carers and help them to better understand the benefits of respite services.
“There is plenty of evidence to show that respite can sustain carers to continue in their caring role and keep the person with dementia at home for longer, and yet the proportion of carers that use available respite and other support programs is low,” according to project leader, Dr Lyn Phillipson.
“The ReThink Respite resource will help people better understand respite services by dispelling myths and educating carers of the benefits of respite services. Ultimately, we want to increase uptake and inform and shape service delivery of respite in the community,” she adds.
Read more at: https://news.agedcareguide.com.au/2016/04/05/dispelling-respite-myths-for-people-with-dementia-and-their-carers/