Film review! “Alive Inside”

Let me start by saying, if you haven’t seen Alive Inside, please do. I saw it first a few months ago and have been watching it again as part of the training for a music activity program I am working on with Copenhagen Living Lab.

This film touches on many of the things that I love about working with people with dementia and their families. You provide the highest quality care by knowing the person and learning to listen to them guide you towards what they need. I felt my own heart in this film. I laughed, I cried, I was inspired. It’s an excellent documentary and definitely recommended!

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Tour Review! Nursing Home of the Future (Fremtidensplejehjem)

January, 2014, a new residence and care home for aging adults opened in Nørresundby, Denmark (just across the fjord from Aalborg). It’s called Fremtidensplejehjem, which means Nursing Home of the Future, and it’s a new facility that is based on sensory stimulation, keeping active/exercise, and socialization. It incorporates new design, and open and social use of space, and high technologies.

I have been attending public and academic meetings in the community about the Fremtidensplejehjem for about the past 2 or 3 years, so have had a good idea of what they envisioned. I was studying welfare technologies specific to dementia care at Aalborg University, so this new building was particularly interesting for me. Yes, I applied for a job there when they were opening, but, unfortunately was not one of the lucky chosen. Part of the reason could be that they are not focusing on dementia care in Fremtidens – of course they know that they will have residents with dementia (in Denmark, around 85% of those in institutional care have some form of dementia), but they did not adjust the facility to specifically accommodate them. I think this might be motivated by their plan to later build a Dementia Nursing Home of the Future (plans are for this building to open in 2017).

Even though I don’t have paid work there, I live quite close and have grown fond of using their entrance area (with plenty of tables, free wifi, sunlight, and free coffee as my “free range” office. I take my lap top and books, set up at one of the tables, and draw inspiration from the surroundings. I must say, so far, all the staff and residents I have encountered in my “free range” office have been absolutely accommodating and helpful, and it seems as if they also enjoy that people from the community use the public space – it brings a different kind of life to a “nursing home” when it is also a space that people meet up for coffee, for visiting with friends (who may or may not live in the institution), for “free range” working, and for bringing a bit more of the community into the community space. Although it hasn’t happened yet, I imagine when I get into some writers block or stuck on a problem, a leisurely walk along the fjord will get the creative juices flowing again.

Thursday, March 20, 2014, I attended a guided tour of Fremtidens, hosted by Alzheimer Foreningen, the Danish Alzheimer’s Association. The tour was led by a PhD student who has been involved with the project for the past 3 years (I didn’t know they had PhDs or students working on the project – which is a little weird since I was one of maybe 5 people that I knew of at the University studying dementia care and the only one at the University studying technologies for dementia care), and we got to see the IT helpdesk (offered free to the public to help older adults figure out their online services used for banking, healthcare, and other governmental services), the wide hallways, the gym and rehabilitation rooms (also offered free to the public over age 65), common areas such as the Orangium (a space where the residents can hang out with an excellent view of the harbor), kitchens where families can come to cook meals together and the residents make bread on the weekends, the media room (for watching movies, listening to music, or reading – also with a fantastic patio overlooking the harbor), and a few other things.
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Film review! “Robot & Frank”

In early 2014, I saw a film called “Robot & Frank.” I think I found it browsing through a robotics website. I know just a little about robotics, but am VERY interested 🙂 I was impressed with the film, and have recommended it to many of my friends already.

Review: Inspiration from comedy

I am taking a day of rest this Sunday. I have been going pretty steady 7 days a week with my latest project (writing a project proposal on healthy and active aging with Aalborg University) and a month of that, plus my own work, has me feeling a bit pooped today. Tomorrow, I start a new project with Copenhagen Living Lab, trying to bring music therapy into nursing homes here in the area.

And on my day off, I am catching up on laundry, dementia in the news, dishes (oh, the dishes…), yoga, and my favorite show, Parks and Recreation. I don’t know any other series that puts me in such a good mood as Parks and Rec.

And one person who I really admire is Leslie Knope. I think she’s a great role model for women.

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Video review! This TED talk has too much emotion, not enough information

So, I found this video on YouTube about ways to find beauty, joy, and meaning in dementia. Usually, I like TED talks. In fact, I almost always like TED talks. This one especially peaked my interest because

1) it is related to dementia,

2) it promotes a positive message in the title, and

3) my name is also Carrie, and my husband’s last name is Clark – if I were to change my name, I would be Carrie Clark 🙂

So, I’m watching this talk by Carrie Clarke and almost immediately I am turned off. I don’t know if it was the tone of her speaking, or the sound of her voice, but it just made my stomach flip around. That intangible feeling that you know something is bothering you, but you can’t put your finger on why. Although I watched this alone, I literally “Ugh’ed” and sighed out loud. Multiple times.

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The World Health Organization and the Global Alzheimer’s Movement

I came across a short article on the US Against Alzheimer’s website, where they pose the question:

Can WHO Lead the Global Alzheimer’s Movement?

And I was relieved they asked it! I had also been thinking about this over the past week but had been hesitant to post about it. I guess I didn’t want to seem jaded since my internship with the WHO on the Global Network of Age-Friendly Cities was a bit on the disappointing side. But, I am glad to see I am not the only one who is skeptical about the WHO leading a global Alzheimer’s movement. Wait…

…I am going to call it a dementia movement. Alzheimer’s disease is the most common type of dementia. But, around 50% of people who meet a dementia diagnosis criteria don’t ever get a diagnosis, so we can really only say that Alzheimer’s is the most diagnosed type of dementia. There are many people who do not have Alzheimer’s disease and will benefit from this movement…

Back to the WHO. They are certainly a global leader in addressing health issues and health promotion, and that the work they do is challenging and important. But large scale, challenging, and important work occurs over a long-term of research, planning, and implementation. Shaping policy and all the work that goes behind that takes a long time. This will be a great help – large scale, challenging, and important work that will affect MILLIONS of people. They can affect the movement in their own way, but I hesitate to call them THE leaders.

In addition to the long-term project cycles, and to the criticisms in the article below, I also wonder:  Isn’t there already a global dementia movement?

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New anti-amyloid drug to fight AD

I came across this article through the Cure Alzheimer’s fund website. While I am happy to spread the word on success in research on treating dementia, I also want to be sure people get the full story and not just the happy headlines 🙂

The jist of the research is that the pharmaceutical company Biogen, with headquarters in Cambridge, Massassachutes in USA, has designed a new drug based on processes that naturally occur in our bodies. This drug, Aducanumab, is a reproduction of our bodies own beta-amyloid autoantibodies, which are natural antibodies to amyloid beta, or Abeta, (amyloid beta creates the misfolded pepetides – which become the plaques – in Alzheimer’s disease).

The really amazing thing is that they find that the drug could potentially prevent the development of any Alzheimer’s symptoms if administered early enough in the disease process. The study showed that the amyloid plaques initiate Alzheimer’s disease by causing the neurofibrillary tangles to form and inflammation in the brain. So, the study suggests that if you can stop the amyloid beta from accumulating in the brain, you can slow down or stop Alzheimer’s disease.

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Crowd-sourcing age-friendly locations

AGE-CAP (AGE-FRIENDLY COMMUNITIES ASSESSMENT APP)

 
The Intelligent Assistive Technology and Systems Lab (IATSL) at the University of Toronto (Department of Occupational Science and Therapy) has developed a smart phone app to create a crowd-sourced database of age-friendly locations, called Age-CAP. They are a multi-disciplinary group of researchers (engineering, computer science, occupational therapy, speech-language pathology, and gerontology) who aim to develop zero-effort technologies (technologies that require zero effort from the “user”) that are adaptive, flexible, and intelligent.
You can read more about their work (and participate in a research study in the Toronto area) on their website.

Age-CAP is a cross-platform smart phone application which aims to create a crowd-sourced database of age-friendly locations. It consists of survey-style forms which allow users to quickly rate the age-friendliness of a location or service. The criteria for rating was developed using the World Health Organization’s Global Network of Age-friendly Cities guidelines (which I also worked on during my internship with the WHO in Copenhagen), and age-friendly community initiatives in other North American cities.

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Aging and the Life-course

Report on life-course theory

I was asked to attend a WHO meeting on life-course theory as part of my internship with the World Health Organization’s Regional Office for Europe. While I was there, I was working on the topics of eHealth and the Global Network of Age-Friendly Cities (and trying to bridge the two). I was working in the Division of Non-communicable diseases and health promotion – Ageing, disability and long-term care. The team I was part of worked on the full spectrum of life, from before conception to aging, all with a focus on health promotion and reduction of non-communicable diseases.

This particular meeting was a brainstorming session on how the WHO is using the life-course perspective to address health promotion. I was particularly excited to attend because of my background in psychology and gerontology, where life-course theory has it’s roots.

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Are the Danes the happiest in the world?

Nyhavn in Copenhagen

On March 10th, 2015, I went to a lecture about if we Danes are the happiest in the world. It was a free event at the Tårnby Health Center and open to the public. 
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We are called the world’s happiest people – although several thousand Danes take medication to get out of bed, be around other people, or go to work. When is medicine the best solution and who should evaluate it?

Hear three researchers talk about stress, personality disorders, and alternative medicine.

1. The latest results in the field of stress research with Malene Friis Andersen from Copenhagen University

2. Personality disorders with clinical leader Pia Glyngdal from the Psychiatric Center in Hvidovre

3. Alternative medicine with Lasse Skovgaard from Copenhagen University

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Film review! “Still Alice”

Still Alice

The film “Still Alice” premiered in Denmark on March 5, 2015. I went to see it the following Sunday. It was a really sunny day, so it was kind of a shame to spend it inside a theatre, but I will say it was so nice to come outside into the sunshine afterwards.

While I have seen that there have been many reviews of the film, I was careful not to read them until I had seen it for myself. I think it’s nice to come in with a fresh set of eyes and to not be influenced by other people’s opinions until after forming some of my own.

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Film review! “Mennesker Bliver Spist”

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While I have been waiting for Still Alice to come out here in Denmark (in March, 2015), another film about dementia has come across my radar. It’s a Danish film that premiered February 26, 2015, called “Mennesker Bliver Spist,” which means “People Are Eaten.” With a title like that, I was expecting some nod to people being (figuratively) eaten by Alzheimer’s disease or other dementias, how they are consumed in a holistic manner, or something along the lines to that. But, the tag line in the image below means “Sometimes you need to go far away to find your way home.” And, now I was not sure what to expect. So, I took myself to the movies on opening night to find out.

Well, first things first, the title comes from a popular Danish song by John Mogensen from 1975, called “People are eaten in Polynesia.” The main character, Herluf, who is played by director and writer Erik Clausen, loves the song and is singing it at a street festival in the first part of the film. Here, he loses his words and cannot follow along with the verses as he normally could, and his daughter makes a comment that he is so drunk he can’t remember the lyrics.

I wasn’t able to find a review of the film in English, so as far as I know, this is the only one out there! So, in this light, spoiler alert! If you are interested in seeing it, I hope that there will be English subtitles one day 🙂 In the meantime, you can view the trailer (in Danish).

We are first introduced to Ingelise, the wife, at her social work job. She is talking with an unemployed man with a drinking problem who we gather is also a delinquent father. She is patient, calm, and kindly tells him to get his act together, after all, people are eaten… After the client leaves her office, we meet her workplace lover. Who is noticeably more handsome than Herluf, her husband. We also see Herluf at work as a mechanic. He is test driving a car as part of his work and we see him stopping to ask for directions back to the garage. When he gets back, he is flustered and easily annoyed by the loud music that the younger employee is playing while Herluf is working on another car’s brakes.

There is a street party in the neighborhood where Herluf and Ingelise live, something that Herluf is very much looking forward to. Here is the scene where he is singing the title song and forgets the lyrics.

We meet his daughter, her fiancé, and her son from a previous marriage, who is close with his grandfather. The daughter is an independent woman, doesn’t like to be called “little lady” by her father, and we get the feeling that she feels she has outgrown her roots. Later, there is a scene where Herluf is telling Ingelise that he doesn’t think their daughter likes him and that she has never said she loves him. In a very Danish way, Ingelise responds that that’s not something people just go around saying, that only happens in the American movies 😉

Herluf’s boss comes to his house to talk to him. He asks about the brakes he fixed for the woman and her daughter who were waiting the other day. Herluf says if he said they were fixed, they were fixed. The boss tells him that they were not fixed and that the woman and her daughter got into a bad car accident after leaving the shop. No one was killed, but people were injured and they want to press charges through the police. He takes Herluf to the police garage, where they can look at the car. Herluf is visibly shaken, but insists that he did not cause the accident and that the brakes were fixed. The boss tells him to take a few days off work to think about things.

Then there is the wedding of the daughter and her fiancé coming up. Herluf is to give a speech. It is common at Danish weddings that the father gives one of the first toasts. He tells his wife that he is taking some days off of work to write the speech and prepare for the wedding; he doesn’t mention anything about his recent problems at work. We see him sitting in a café working on his speech, and he gets a visit from a friend. The friend asks if Herluf is now retired or why isn’t he at work during the day, to which Herluf says he is taking some vacation days to prepare for the wedding. The friend goes on to talk about how now that he is retired, he spends his time at the car auctions, where he can buy cars to fix up and then sell for a profit. Well, he doesn’t remember the friend and can’t place him even after the friend says how they knew each other. And Herluf starts talking oddly, about how a woman was bicycling past on her Buick and such. The friend laughs at what he thought was a joke and leaves Herluf to finish his writing.

Erik Clausen får problemer med hukommelsen og hans kone Ingelise er utro med en kollega.(Foto: Susanne Mertz)

At the wedding, all are having a good time, and Ingelise clinks the glass and announces it is time for Herluf’s speech. He starts, stumbles, and recovers by saying how strong of a woman his daughter is, and how strong her mother is, and in a family of strong women, he would like to give the mother the chance to make the main toast. She accepts, comments on how clever he is, and makes her toast. No one is any the wiser that Herluf forgot what he had been rehearsing to say.

Lærke Winther kaster sig i rollen som Erik Clausens datter i filmen ud i sit tredje ægteskab. (Foto: Susanne Mertz)

The next day, his wife leaves to “visit the daughter” (she went to her lover’s place) and Herluf is packing down the tent from the wedding reception in their back yard. The police arrive and ask for Herluf. He says that he is another man, just taking down the stuff from the wedding, no Herluf here. The police leave, and Herluf leaves. He goes to the automobile auction where the friend (from the café) goes to buy cheap cars, fix up, and resell. He finds the friend but keeps calling him Bjarne, is not making sense, and is getting more frantic. He tells “Bjarne” that his brain is acting funny and he is terrified the doctors will tell him he has dementia. The friend, embarrassed that Herluf is acting frantic and odd, disappears into the crowd. Herluf, caught up in his own confusion and in the action of the car auction, bids and bids and bids to a very high amount on a car. Later, he is at the bar (there is usually a pop-up bar serving beer at nearly any Danish function) when the auction cashier asks him to go to another desk to pay for the car. Herluf knows nothing about a car, insists he paid for his beer, that he has his own car that he drove there in (which he left the keys in), so why would he pay for another car. He decides to hide from this man and ends up near some Polish men who are trying to get a car started so that they can sell it. They are regulars at the auction house, who fix up Polish cars and drive them up to Denmark to make a profit (cars are very expensive in Denmark due to high import taxes – no cars are manufactured in the country). Herluf hands one of them his beer and starts working on the car. One of the men comments that he has never known a Dane to give away his beer. 🙂 He gets the car to start and everyone cheers. Herluf then sees the cashier for the auction and hides on one of the trucks loaded with cars. He gets into the front car on the top row to lay low, and the next thing he knows, the truck is taking off and on the highway and has no way to make it stop or to get off.

In the meantime, some younger adults have noticed the keys in Herluf’s car and take it for a joy ride. Ingelise has come home to find the doors open, the tent laying in the backyard, and no sign of Herluf at her house or her daughter’s.

Herluf wakes up in a small bed in a Polish garage. He is disoriented and doesn’t speak Polish, so wanders into the shop and starts working on cars. The Polish men love that he is doing good work for free, although they obviously can tell he is not well. They joke that they have mistakenly stolen a Dane. 🙂 In all, he stays with them for about a week. Fixing cars, eating meals, drinking vodka, and sleeping in the small bed in the back room. They have a woman who comes to cook for them there in the evenings; she has red hair like Ingelise and Herluf believes it is her. He comments on how great it is to be with her again and it’s the most important thing that they are together. It was very touching and sweet. There are one or two scenes where Herluf takes off walking, finally to be found by one of the Polish men who explain to the angry produce seller that Herluf is ill and didn’t mean to steal, or they find him wandering down a street. The one time that he stole fruit, he later arranged it on a hub cap as a gift for the Polish woman, who he thinks is his wife. Herluf is getting more confused and is showing less ability to decide his own actions. He also starts reciting the speech he made for his daughter’s wedding.

When the men are ready to drive more cars up to Denmark, they load Herluf into the truck, give him some vodka so he will fall asleep, and start their journey.

Meanwhile, back in Denmark, no one knows where Herluf is. The police have found his car near some woods but no sign of him. Ingelise goes to Herluf’s work to see if he has been by there and lets them know that he is missing. She also learns a little bit of information that Herluf has had some problems at work (the brakes). Family starts coming in from out of town, friends organize a search party, the whole group pulls together. Ingelise breaks it off with her lover, realizing how much Herluf means to her now that she has no idea where he is or if she will see him again. She also takes some time off of work while he is missing. The daughter reluctantly cancels her honeymoon, which her son and her new husband push her to realize is the right thing to do. At one point, the daughter is leading the group in meditation, which got a few laughs from the theatre audience. Here, Ingelise says that she would like if everyone sings Herluf’s favorite song, “Mennesker Bliver Spist,” and that maybe he will somehow be able to feel how much they all care for him. During the song, there is a phone call. The police have found him wandering around (he had been dropped off at a gas station by the Polish men when they returned to Denmark).

When the police bring Herluf back to his house, everyone is standing outside waiting for him. A group of about 10 – his wife, daughter, son-in-law, grandson, sister-in-law, brother, friends – are anxious to know if he is ok and where he has been. Herluf is helped out of the car by the police and is in dirty clothes. He does not recognize the house, and turns away to walk down the street. This is the first time the family and friends notice that something is not right with Herluf. The police escort him up to the house, where Herluf doesn’t appear to recognize anyone, and they leave. Ingelise helps him shower, which is an emotional scene. Then, everyone gathers for a picture. All are looking at the camera except Herluf, who keeps looking out the window. The daughter tried holding his head straight for the picture, but he looks out the window again as soon as she moves her hands.

The film ended and I started to put on my coat. I have noticed that, when I go to watch movies in the theatre here in Denmark, that many people stay seated through the end credits. Not necessarily talking about the film, but they do stay seated. So, I was the only one who got up to leave. I went to the bathroom and “How Great Thou Art,” was playing on the speakers. I shed a few tears during the film, mostly at how scared and confused Herluf must have felt, but they really started to flow once I heard the song in the bathroom. I could practically hear my Grandpa Warren’s tenor voice back in church. He was great at that song. He was a great singer in general, but this song always makes me think of him. He had had several TIA strokes and eventually developed dementia. The dementia became obvious while I was studying for my PhD in technologies for dementia care, and he was the first (and so far only) family member I have known who had dementia. It’s a whole ‘nother thing when it’s one of your own family members. For sure. He passed away in May, 2013, one month after Grandma passed away, and he was buried on his 91st birthday. I think that the song choice was certainly an odd one to be playing the the common areas of a movie theatre anywhere, but especially in a country where religion and church attendance are not central to the society. I was happy to have the common area to myself to let some of the emotions out.

I later learned that a famous musician (in Denmark), Kim Larsen, had written a special song for the film, called “Into the Darkness,” so perhaps everyone was staying to listen to the song.

So, now that I’ve described the highlights of the film, time for the reviewing part. First, I have to start by saying that there is so much Danish culture in this film! It even surprised me, although I am not sure why since I have lived here for nearly 10 years and have seen many Danish films. From the slighting tone of dealing with the unemployed person, to the song which gave the film its title, to the Kim Larsen song, to the scene of the street fair and how very, very Danish it was. There was one joke, where Ingelise was explaining to a friend that Herluf’s brother, Bjarne, kissed her at the wedding dance, and she was worried that Herluf saw and maybe that is why he had left her. The friend was asking why this would be a problem since it is not like Herluf to leave her over such a trivial thing. Ingelise explained that years ago, Bjarne switched to another political party and the two brothers had a falling out. The punchline was that the friend was shocked that she kissed someone from the Danish People’s Party (Dansk Folkeparti – a right-winged party)! I like that the film was so rich in culture.

One thing I found very interesting about the film, was that the Polish men took such good care of him. Granted, they didn’t give him a shower, but they fed him, included him in their social time (usually involving beer and vodka), went looking for him when he wandered off, and appreciated that he was an excellent mechanic even though they could tell he was ill. I imagine it would be so disorienting for a person with dementia to suddenly be in Poland, where they cannot understand or speak the language, they don’t recognize anyone or any place. I also appreciated the intergenerational aspect, as the special bond between the 13 year old grandson and Herluf was apparent and consistent. They were buddies and cared for each other deeply.

The acting was fantastic in the film! Erik Clausen as Herluf did a great job of acting like someone with dementia. It wasn’t over the top or so obvious, but slight and largely through facial expressions and in his silence. All the actors did a great job, no one stole the spotlight and the film came together wonderfully. I think the film did a good job of showing how confusing dementia was for Herluf, when he couldn’t recall the brakes he had worked on, but insisted that they had been done if he said they had been done, when he didn’t understand that he was bidding on the car at the auction or why the cashier was trying to make him pay for one, when he mistook the Polish woman for Ingelise and knew that he wanted to be near his wife.

However, if this were a real situation, I would suspect that Herluf’s dementia was caused by an infection or maybe a nutritional deficiency, and could likely be one of the reversible types of dementia. In the span of a week or so, he went from having milder memory problems but still being able to drive to the auction that his friend had told him about and knowing how to elude the police, to not recognizing his house or family, not able to bathe, and barely able to speak. True, every person’s dementia progresses differently, but it would be a rare type of dementia to go from mild to severe in less than 10 days, and the progression would indicate that there is something more rapid going on. (I am not a Medical Doctor, so please don’t take this as a differential diagnosis, it’s my professional opinion based on what I saw during the fictional film). So, in this sense, I don’t think that the film gives such an accurate portrayal of dementia or how it typically progresses. Someone who may know very little about dementias and saw this film would get the impression that once you have dementia, you quickly become this stereotypical image of a person who cannot do anything for themselves. In actuality, most dementias progress over years and many people are fairly high functioning up until the moderate or late-moderate stages of dementia.

All in all, it was an entertaining film, mixing drama and comedy without either one being overpowering. In the trailer, above, it’s described as “a serious film with humorous side effects.” It has cultural aspects that you wouldn’t find in non-Danish films, which makes it unique in the world of dementia-related films. My only criticism would be an inaccurate portrayal of how dementia typically progresses, which doesn’t really educate the public on how dementia really is, but I guess that is not the intent of the film. And this criticism, I can turn into an opportunity to discuss with others about how there are reversible dementias, how the most common types usually progress, and how people with dementia can still be highly functional members of their families and societies. It certainly opens a dialogue.

If you can see it (I know, I know… it needs English subtitles to reach a wider audience), I recommend it!

Thoughts from Erik Clausen


Erik describes his own thoughts on aging and dementia, as I have translated from the Danish weekend newspaper, Søndags Avisen (The Sunday Paper).

Erik Clausen’s 72-year  life has, in his own words been, “far, far more past than future.” The recognition does not change his philosophy that people every day should play with imagination like a child to prevent the brain from becoming a lax muscle.

He does not see life finish before he is over 100, but his upcoming film, “Mennesker Bliver Spist” has nevertheless put his thoughts on overtime. For the lead role in the film, which Clausen himself performs, (the character) collapses mentally and disappears both physically and mentally into the dementia mist.

“It is a sore point, because when I made my film and worked so much with dementia, the disease came in under my skin, and I probably should have a weaning period afterwards,” says Erik Clausen. “I experience all the time that there are things I cannot remember, but it has always been that way. I am very distracted, but suddenly I think, ‘damn, now it sneaks up?'” says Erik Clausen, who got the idea to make a film about dementia when the syndrome came close to him. “The story came to me when a few years ago, one of my old buddies got dementia one year. Suddenly I faced someone I knew well, but he just went straight past me. On the other hand, he still seemed good for the young girls,” says Erik Clausen and smiles to himself.

He has spent his whole life trying to tell – both as a street performer, painter, songwriter, critic, and film maker. He is known to speak, but now he struggles to find the next word that tells how it was to see a lifelong friend simply walk past him – not in anger, but in ignorance. “It was a shock,” he says, and continues, “and I didn’t tackle it well at all. I didn’t understand what was going on, and I tried to make contact with him, but failed. I met him several times when he spoke in tongues and repeated himself. I gave up quickly, and a short time after, he moved into an institution where he walked and smiled until he died,” said Clausen, who, in his film, plays a man who no longer can recognize his loved ones.

PEOPLE ARE EATEN

Erik Clausen has written the screenplay and instructed and played the lead role in the film, which is about the mechanic Herluf, who has begun to forget small and big things in everyday life. One day he doesn’t come home like he usually does. Only then does the family find out how much they love him.

Bodil Jørgensen plays Herluf’s wife, Ingelise, in Clausen’s new film “People are eaten.” “In my family, it was my mother who slowly lost her memory. My father followed her in an intricate way, in and out of reality. He continued to see my mother as the woman he loved – and that story I would also like to tell here together with Erik,” says Bodil Jørgensen, for the first time working in an Erik Clausen film.

I cannot accept dementia

Erik Clausen has his own defense against aging and age-related diseases.

“I cannot really accept lifestyle diseases. I argue that they come because we use our brains wrong and our imaginations not enough. The brain is a muscle that must be exercised, but modern people are programmed to do the same things all the time. At the same time, there is pressure on us. We need to eat healthy, we need to be in good shape, and there are expectations we should life up to. That means that one feels wrong, too fat, too thin, too green, too blue, or whatever the hell you feel now. That presses people over in the defensive, and then we stall. If we keep our brain going, I don’t think that it will collapse. It is a naïve stance, but it is the starting point for my life,” says Erik Clausen, who himself lets thoughts and imagination run free when he hears music and paints – or is in grandchildren’s rooms.

More suffering with dementia

Dementia is the term for a condition where the mental capacities become weakened by illness. The word “dementia” comes from Latin and means “away from the mind.”

In Denmark, it is estimated that around 90,000 people are affected by dementia (50,000 of those having Alzheimer’s). 3,000 of the people in Denmark who have dementia are under the age of 65. As of January, 2015, there are 5.6 million people living in Denmark.

The risk for developing dementia increases with age, and as a result of the increasing life expectancy and the growing elderly population, it is expected there will be a significant growth in the number of elderly people with dementia in the coming decades. It is estimated that 15,000 new cases of dementia are diagnosed every year in Denmark, but around 65% get an “unspecified dementia” diagnosis.

The direct cost of dementia in Denmark is estimated to amount to 9.5-15 BILLION Danish kroner per year ($1.35-2.14 Billion per year.

Source:  National Research Center for Dementia

While I completely agree with Erik Clausen’s stance that people should use their imaginations and exercise their brains like a muscle, this alone would not prevent dementia in all people. Furthermore, lifestyle diseases do not come from not using our imaginations or from “using our brains wrong.” They, of course, come from our lifestyles and the choices we make throughout our lifecourse. Whether or not we exercise, eat healthy, smoke and drink to excess, socialize or isolate ourselves, etc. From his interview, we are also given some insight into why Herluf’s dementia progressed so quickly in the film – as one of Erik’s friends had dementia which progressed quickly over a year. It is interesting to hear both from a friend who witnesses a fast progression of dementia over a year (Erik’s description) as well as from a daughter who saw her mother slowly lose her memories and her father provide what sounds like very compassionate care (Bodil’s description). Finally, I don’t like the subtitle “more suffering with dementia,” but it is the translation. I also added some more data from the Research Center for Dementia’s website.

Hope you liked my review – leave a comment and let me know what you think!

Healthy Aging: What can you do?

This afternoon, I went to a lecture on healthy aging in Tårnby, Denmark. The theme was “Healthy aging – what can you do?

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Healthy aging is on the agenda in these years and older adults are encouraged to be active and live healthier. But to what extent is our health something someting we are in control of? What can you do yourself? And what factors can you not do much about?

Hear about the subject from two different angles: from the anthropological and from the biomedical.
1. Social communities and the perception that health is something that you can – and should – check. From postdoc Henrik Hvedegaard Mikkelsen from the Department of Anthropology and the Center for Healthy Aging at the University of Copenhagen
2. Training and protein rich diet – and the aspects of health, we cannot do much about. By Associate Professor Lars Holm of Biomedical Sciences at the University of Copenhagen

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Course on living with dementia

To keep up to date and in the loop on the latest in dementia care, I signed up for a course on Coursera, a massive open online course, or MOOC. It consisted of online videos to watch and weekly assignments. We all communicate to each other through the discussion boards on the course web page. The course is offered for free, but I decided to take the signature track in order to receive a certificate when I am done. It was Living with dementia:  Impact on individuals, caregivers, communities, and societies.

This course is offered through the Johns Hopkins University School of Nursing and is lead by Dr. Laura Gitlin, PhD and Dr. Nancy Hodgson, PhD, RN, FAAN.

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