How to Come Together to Care for a Loved One With Alzheimer’s

“Hey, we’re in this together, so we’re going to do the best we can do.” People often rise to the occasion when news that a loved one has been diagnosed with a disease emerges. And you might be surprised by what your sibling has to say when you listen, she says. “Sometimes building strong relationships through communication can get better, even when the disease is getting worse.”
Stories from siblings who have done it and helpful take-home tips. Read the full article at:  How to Come Together to Care for a Loved One With Alzheimer’s
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Carers falling through the cracks

Compensating the kindness of strangers

Mary makes $8.40 an hour before taxes — $1.60 below the Massachusetts minimum wage — from the private agency that employs her. She nets $610 a week for 84 hours of work — and makes no overtime, although state law entitles her to time-and-a-half for every hour over 40. Continue reading

Passage of time: why people with dementia switch back to the past

Passage of time: why people with dementia switch back to the past

There are neurological reasons why those affected by dementia judge the passage of time differently, and can access remote memories from many decades ago while unable to remember events of the past few hours.

Interesting article on perceptions of time for people with dementia and how to respond! Read the full article at:  https://theconversation.com/passage-of-time-why-people-with-dementia-switch-back-to-the-past-45159

ReThink Respite

Dispelling respite myths for people with dementia and their carers

ReThink Respite is a new online resource aiming to support people with dementia and their carers and help them to better understand the benefits of respite services.

“There is plenty of evidence to show that respite can sustain carers to continue in their caring role and keep the person with dementia at home for longer, and yet the proportion of carers that use available respite and other support programs is low,” according to project leader, Dr Lyn Phillipson.

“The ReThink Respite resource will help people better understand respite services by dispelling myths and educating carers of the benefits of respite services. Ultimately, we want to increase uptake and inform and shape service delivery of respite in the community,” she adds.

Read more at:  https://news.agedcareguide.com.au/2016/04/05/dispelling-respite-myths-for-people-with-dementia-and-their-carers/

Visit the ReThink Respite webpage at rethinkrespite.com

Professor Uses Spice Painting to Slow Progress of Dementia

Dr. Tisone’s scent painting activity involves mixing spices with water to make watercolor paints with the hope that the scents will bring back memories for the patients.  Students are trained to elicit conversation based on reactions to those smells.

– See more at: Professor Uses Spice Painting to Slow Progress of Dementia

Danish model of eHealth

As a follow-up to my previous post on eHealth in Denmark, this shorter, downloadable document (also in English) gives and oversight and real-life examples of the Danish model of eHealth and how eHealth is used in Denmark.

Click on the link below to access it – happy and healthy reading!

The Danish model – Denmark and eHealth

Mobile Health: Apps for Every Age and Ouch

The apps, sensors and seemingly unlimited data at our fingertips put people — not providers — in charge of their own health. Medical procedures that once cost thousands of dollars can be reduced to pennies in the form of an app.

This cool, interactive infographic gives examples and real-life experiences of people using mHealth apps for better health and well-being. Click on the link below to read more!

Explore how the recent explosion in mobile health and medical apps can impact every stage of a person’s life. And potentially, our health care costs.

Mobile Health: Apps for Every Age and Ouch

Improve the human rights of dementia patients and carers

The government must act to improve the human rights of dementia patients and carers

Few now question the right of parents to stay with children in hospital – so why don’t patients with dementia have similar rights?

John’s Campaign is single-issue and simple. It is for the right of carers to stay with people with dementia if they are admitted to hospital. It is named for the father of my friend, the writer Nicci Gerrard, whose father’s dementia was catastrophically accelerated by a stay in hospital where he was largely cut off from his family.

In the 1960s we had to campaign for parents to have the right to stay with their children in hospital. Few question this right now. So why does the same right not apply to carers of people with dementia?

Source: The government must act to improve the human rights of dementia patients and carers

Dementia and the great outdoors

The great outdoors: why should you help someone with dementia to go outside?

If a loved one is diagnosed with dementia your instinct will probably be to protect them and keep them safe. Going out might start to feel daunting and stressful. Isn’t it better that they stay at home where you can keep a careful watch? Well no, actually, it isn’t.

See more at: https://www.unforgettable.org/blog/the-great-outdoors-why-should-you-help-someone-with-dementia-to-go-outside/#sthash.zIVWyY6i.dpuf

Dem@Care: Dementia Ambient Care 

Dem@Care aspires to contribute to the timely diagnosis, assessment, maintenance and promotion of self-independence of people with dementia, by deepening the understanding of how the disease affects their everyday life and behaviour

It implements a multi-parametric closed-loop remote management solution that affords adaptive feedback to the person with dementia, while at the same time including clinicians into the remote follow-up, enabling them to maintain a comprehensive view of the health status and progress of the person with dementia.

Check out the project’s website to watch videos and learn more about the work they are doing:  Dem@Care

Read more about the project at: Dem@Care: Dementia Ambient Care – Multi-Sensing Monitoring for Intelligent Remote Management and Decision Support 

Activities for Nursing Homes and Assisted Living

Activities for Nursing Homes and Assisted Living

Key to Quality of Life and Strong Contributor to Culture Change

An individualized, well though out activities program is at the heart of a quality life for residents in nursing homes or assisted living residences. Activities is not just about bingo and watching television. In fact, activity programs can be quite creative and stimulating for the mind. And the health and well-being benefits of a good program are becoming more and more documented. In short, this stuff works.

Read the full article here, on AssistedLiving.About.com

LGBTQ carers

This article was brought to my attention through one of the Facebook group called Dementia Knowledge Exchange Global. I have a few other articles on this blog about LGBTQ issues in aging and in care, but haven’t yet focused on LGBTQ carers so this article is a great addition! It is the viewpoint of the author, David, as a gay man caring for his father and what he observes in this role. A good sociocultural piece on how LGBTQs can be stigmatized and overlooked, even when the issues aren’t about them.

Please note that I have edited some of the content to better fit with this blog; you can read the original article by clicking on the title. This article originally appeared on CaregiverRelief.com, a website that offers a host of information and support for carers, with a focus on dementia.

If you want to check out some of my related articles:

LGBTQ people with dementia should not be forced back into the closet

Older LGBTQ still experience prejudice from care staff

Housing experiences of older LGBTQs

LGBT carers:

The isolated among the isolated, and what Baltimore is doing to help

By on September 12, 2015

There’s a double-edged sword when it comes to LGBT people and caring.

First, LGBT people often fall into the carer role. Many caregivers, gay or not, will attest that when you don’t have children and/or a spouse, you tend to be elected mom’s or dad’s carer by your siblings. The idea is that you don’t have kids to look after, you don’t have a spouse to coo over, so “it’s just easier” for you to do it.

In some cases, these gay and lesbian carers are married. And they do have children. It’s just that their siblings and their relatives don’t legitimize them. Continue reading

5 Therapeutic Activities for Alzheimer’s Care Partners

This post comes to us from familyaffaires.com. I came across it on a LinkedIn post by a gentleman I met in a fantastic online course about dementia, Mike Good. Mike Good is founder of Together in This, an online community helping family members caring for someone with Alzheimer’s. Through short, informative articles and easy-to-use tools, such as the Introductory Guide to Alzheimer’s, he helps them take control and have peace-of-mind they are doing the right things.

You can access the original article on familyaffaires.com by clicking on the title, below.

5 Therapeutic Activities for the Alzheimer’s Care Partners

We often hear about therapeutic activities that are beneficial for the person with Alzheimer’s or another dementia but it’s just as important to consider their care partner – the caregiver.

Living successfully with the disease requires that both care partners enjoy therapeutic enrichment that benefits their mind, body, and spirit.

But because the caregiver is often the only person caring for their loved one, it is difficult for them to find time to enjoy activities that are beneficial for them as well.

There are activities that can be done together that simultaneously meet the needs of the caregiver while providing beneficial sensory stimulation for the person with Alzheimer’s or other dementia:

Read the rest of this article at familyaffaires.com

Some tips for late stage dementia

This is another post that comes to us from Personal Health Records, another WordPress blog. This article gives some tips about caring for a person with late stage dementia. Do you have any additional tips or maybe some insights into how these tips have or haven’t worked for you? Share your knowledge and let us know in the comments below.

How can I help someone in late stage dementia?